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Rep. Louise Slaughter to visit Center for Disability Rights on Monday

April 18th, 2008

I am proud to announce that Rep. Louise Slaughter (D-NY) will visit the Center for Disability Rights, where I work as a Systems Advocate, on Monday, April 21, 2008, at 4:00 pm. Rep. Slaughter recently signed on to the Community Choice Act.

Bruce and I will give her a tour of the building, then, we will gather in the large conference room, where Rochester ADAPT will present her with an orange Community Choice Act Now! T-shirt, and take some pictures and videos. I will post these on Monday evening.

We are really exited and honored by her visit!

Another Health Subcommittee Member Joins On!

April 14th, 2008

Another member of the Health Subcommittee of the House Energy and Commerce Committee has signed on to the Community Choice Act!

Rep Capps, Lois [CA-23] - 4/10/2008

I remember her being present and speaking at the hearing back in January.

Doing things a different way

April 5th, 2008

RA’s Note: Please excuse the sloppiness of my page today. I am experimenting with new code, and can’t figure out how I got things to work without the blank images and all.

It has been a REALLY busy time for me lately. We have been working hard on getting funding from the state for Independent Living. Our CIL, Center for Disability Rights, is the second largest CIL in New York State, yet we get NO state funding, and very little federal funding. We have tried the usual stuff–mass e-mails, faxes, and calls, to no avail. We have considered protesting, and occupying the offices of the main players in Albany, but we decided to go in a new direction with our advocacy for IL funding and with pointing a finger at the people to blame. So we made a viral video to spread on YouTube. Check it out and send it to everyone you know!

” align=”left” /> 

 

http://www.youtube.com/watch?v=domQixfPYq4

A HUGE thank you to our script writers, directors, puppet makers, producers and our vocal talents:

Anita Cameron, Bruce Darling, Chris Hilderbrant, Zung Ho, Melinda Johnson, Terrie Lincoln, April Oakes and Chris Wood!

Additional concept contributions credits to: Sadie Gilbride and Marsha Sweet.

(The text and description is copied below)

Joe Bruno – Chris H                             Shelly Silver – Anita C

Gov. Paterson – Chris W                      Mike Nozzolio – Zung H

1199 - April O

Scene opens…

Sign says… “How NY Budget process REALLY works…”

Three men, smoke filled room…

*mumbling and muttering*

Bruno: “Dave, I’m so happy you’ve been such a team player…. It’s
really great that we are able to have everyone that matters here at the
table…

Silver: “Yup, just like the good ole days…

Paterson: “Is it smokey in here? Or is it just me?”

Bruno: “So, we all agree to borrow $250 million and build a new Racino?

Silver, Paterson (in redneck unison): “Yup”

Bruno: “It’s practically pennies. It’ll pay for itself.”

(Enter Senator Mike Nozzolio riding a white horse)

Mike: “We need funding to help people with disabilities in Ontario
County… only 300,000 dollars… practically nothing…

Silver, Bruno, Paterson: *grumble* “Sounds expensive”

Silver: “We could tax the super wealthy…

Bruno: “Shelly, ya know why that idea reminds me of your momma?
Because it’s sooooo stupid!”

Mike: “It’s less costly to serve them at home than in a nursing
facility…”

Paterson: “Ok, let’s do it…”

Mike: *bows* “Thank you, sirs. Thank you Thank you thank you.”

(Exits)

*three men mumbling, grumbling*

(Enter 1199 on a dark horse, purple shirt, yellow 1199)

Union Manager says: “We need more money in our nursing homes and
hospitals…”

Paterson: “But we need to reform healthcare… get away from
facilities”

Union Manager: “But we make political contributions…” (*cha-ching*)

Bruno: “He’s got a point there, Dave…”

Paterson: “Ok, but we need to cut back our budget…

Silver: “Let’s nix that Ontario funding…

Bruno: “Yes, that will take care of it…

Silver, Bruno, Paterson: (triumphantly) “And we’ll raise the tax on
cigarettes!”

*grumbling, mumbling*

*fade to black*

I hope that you like it. We all had fun making this little skit/movie/clip/video, or whatever you choose to call it! If you want to see some funny clips on the making of the movie, go to http://www.youtube.com/user/adaptanita They are right on the front of the page. Enjoy!

 

This is no April Fools Joke–Louise is on!

April 3rd, 2008

WooHoo!!!! A few days after our meeting, Louise made good on her promise to sign on to the Community Choice Act. See?

Rep Slaughter, Louise McIntosh [NY-28] - 4/1/2008

That brings the total to 11 NY representatives who have signed on!

Come Celebrate With Us!

April 2nd, 2008

 

ADAPT 25th anniversary logo with Wade Blank and all the logos over the years

  

ADAPT is having its 25th birthday! This April will mark the 25th anniversary of the first national ADAPT action. This year also marks the 20th anniversary of my first national ADAPT action. I’d been hanging around ADAPT since 1986, always on the fringes — a shy, quiet young thing, totally unremarkable, except that I was Dennis Schreiber’s attendant and interpreter. Almost anybody around back then remembers Dennis, but probably doesn’t remember the mousy little Black girl with unruly hair who was his attendant. That was me.

What is ADAPT, you ask? Well, ADAPT is a national, grassroots disability rights organization that began in Denver, Colorado. It was started by 19 people with disabilities who wanted access to public transportation and public places in their community. Many of them had been incarcerated in a nursing home for most of their lives, and had only been out a relatively short time. One of their first big battles was with the Regional Transportation District (RTD), Denver’s transportation authority. After countless meetings and negotiations that went nowhere, the group had had enough, and staged a two-day protest where they blocked the intersection of Colfax and Broadway, the busiest streets downtown, blocking buses, and getting out of their wheelchairs and lying in the street. That was the “shot heard ‘round the world”, if you will, and people with disabilities in other cities wanted to learn how to do direct action to bring about change.

You can’t even begin to talk about ADAPT without talking about Wade Blank. Wade was once an activities director in a nursing home called Heritage House This was the place where the original group that started ADAPT was incarcerated. Wade’s history of working for social justice and social change began long before then, but while at Heritage House, he listened to the dreams of the young folks trapped there, and ultimately helped them to free themselves, and move into the community. They founded Atlantis Community, the second oldest independent living center in the nation.

Once the Gang of 19 was out in the community, they realized that there were many barriers—inaccessible public transportation, restaurants, stores, and other places. Wade imparted his knowledge of community organizing and activism to the budding activists, and they began the daunting task of fighting for the right to go where everyone else could go.

Today, ADAPT has grown from the “Gang of 19” to a grassroots network of thousands of people with disabilities and our allies, with at least 500 people from over 30 states, and sometimes other countries, continually showing up at each action. We are a diverse group…by disability, by politics, by gender and orientation, by race, by ethnicity, by age (literally cradle to grave, and even having had people die at actions), by geography, by ability to communicate and/or use assistive communication, by income (though most of us are at or below poverty level), by marital status or arrangement, by work experience or former occupation, or inability to work, by institutional history, and so much more! We are a real community, even family, that celebrates births, and the lives of those who have passed on, and celebrates the achievements of each of us, be it personal or systemic. Though we have no bylaws, elected officials, or directors, we have managed to realize many significant achievements.

We have gone from being considered rag-tag “militants”, “radicals”, and “hippies” to being a powerful force to be reckoned with. We represent the cutting edge of disability rights and activism, and have gained the respect of many elected officials and other powerful people. Some may not like ADAPT, but they do respect us, and it is much easier to get to the table to help shape policy.

I, too, have grown. I started out as a shy, mousy 21-year-old, who rarely spoke, and when I did, it was barely above a whisper. I desperately wanted to work for social justice and social change. Having been born only three years before the death of Dr. Martin Luther King, Jr., I felt guilty for not being able to fight for the civil rights of African Americans. I had been involved in several peace and justice movements, but I never felt at home, and never felt as if I were a real part of things. Also, I often was the only African American taking part in the activities.

I joined ADAPT near the end of 1986. At the time, I was living in Chicago, IL, my home town. A friend of my godmother, a Sister in the order of the School Sisters of Notre Dame (SSND), called her to see if there was anyone that she knew who would be interested in working as an attendant for a man who had a disability. The man, Dennis Schreiber, belonged to a disability rights organization and travelled, and needed someone as a back-up staff. My godmother immediately thought of me, and suggested that I apply for the job. I did, and the rest is history. For the first year, I just hung out, quietly participating in local actions. I was so amazed at the work that ADAPT was doing locally with transportation issues. I also felt at home because here were people who either looked like me, or had similar experiences. Then, in March of 1988, I was finally able to go on my first national action—DC Siege/DOT! I was forever hooked, and from then on, I went with Dennis on ALL of the actions.

Shortly after I joined ADAPT, I met Wade Blank, and we hit it off immediately. In December, 1988, I moved to Colorado Springs, CO, to work with Atlantis/ADAPT. They had recently opened a new office in Colorado Springs. We often went to Denver to participate in actions or meetings, so I saw a lot of Wade, and was able to learn more about organizing and activism. In 1991, I moved to Denver to work in the main office as a community organizer, working directly with Wade, who became my mentor. Though Wade passed away only two years later, I felt enriched and blessed by being able to work with him. The pearls of wisdom that he sent my way were countless!

Over time, I grew from the aforementioned mousy chick, to a fiery activist. I have become a ham, of sorts, in ADAPT, singing, chanting, and helping to keep up our troops’ spirits. I have also become a leader, sometimes helping with negotiations, and stuff, but mostly helping to keep people informed, safe, and pumped up during the actions. I now live in Rochester, NY, and usually help to plan our local actions.

ADAPT has changed my life. I learned how to be an activist, and catalyst for change. I have learned (and am still learning) the political process, and policymaking. Through ADAPT, I have done some really cool and amazing things like help to plan a successful two-week vigil in Colorado to protest budget cuts that could have sent hundreds of people with disabilities back into institutions. I participated in the Free Our People March, where 210 people wheeled and walked from Philadelphia, PA, to Washington, DC, to bring awareness of, and to call for the passage of MiCASSA (Medicaid Community-based Attendant Services and Supports Act), now the Community Choice Act (CCA). I was one of 50 ADAPT members who met with President Bill Clinton in the East Room of the White House. I wouldn’t have been able to do these things had I not been with ADAPT.

That is why I am so excited about ADAPT’s 25 anniversary! We will be in Washington, DC from April 26-May 2, 2008. There will be some amazing stuff happening for this celebration:

April 27

National Fun*Run

ADAPT will hold its 2nd Fun Run/Roll, with the incomparable Marca Bristo as the Honorary National Runner/Roller. For more information visit:

http://www.adaptfunrun.org

April 30

When You Remember Me

Showing of the movie, “When You Remember Me”, a made-for-TV film starring Jeff Savage, Kevin Spacey, and Ellen Burstyn that chronicles Wade Blank’s work freeing youth from a Denver nursing home…work that morphed into the creation of both Atlantis, and ADAPT, will be shown in the evening. Here is the link the synopsis of the movie:

http://movies.nytimes.com/movie/129908/When-You-Remember-Me/overview

May 1

The entire day will be given over to the celebration! Here is just some of the amazing things that will be taking place:

StoryCorps—if you listen to NPR, then, you are familiar with StoryCorps, where people record their stories for the Library of Congress, and some of these are aired on NPR. StoryCorps will be at our hotel recording stories from ADAPT folks. I am so excited! Here is the link to StoryCorps:

http://www.storycorps.net/

ADAPT Museum–There will be two huge rooms of multimedia ADAPT historical displays, including blow-ups of 50 of Tom Olin’s incredible photos, every T-shirt from every ADAPT action over the past 25 years, artifacts, memorabilia, first person accounts of every action, videos, slides, music. The folks from Denver are bringing most of the items, news clippings, etc.

ADAPT Jeopardy—this is Jeopardy! ADAPT style!

Tales Around The Campfire—with Mark Johnson

The Show

The Barbeque

Several dignitaries have been invited. Representative Pat Shroeder, who came to the first Denver action back in 1975 will be there!

This is only a partial list of what is happening, so come join us for this magnificent celebration of 25 years of activism. I’ll see you there!

 

Our meeting with Rep. Slaughter

March 25th, 2008

This afternoon, Gene and I had a meeting with Rep. Louise Slaughter in her Rochester office. For the better part of a year, ADAPT has been trying to get her to become a co-sponsor of the Community Choice Act. She had sign on the CCA’s previous incarnation, the Bill Formerly Known as MiCASSA, but she balked at signing on to CCA stating that the bill cost too much. We provided her with the new study by the University of California at San Francisco, but her staff never found time to read it, or bring her up to speed. When ADAPT met with her in January, right after the hearing on CCA before the House Energy and Commerce Committe, she gave us the same tired old speech about the bill costing too much, and us being in a war, and under a deficit.

On Friday, March 14th, Bruce was sitting next to Rep. Slaughter on a flight back to Rochester, and took the opportunity to speak with her about meeting in Rochester to discuss the Community Choice Act. She told Bruce that she was very busy, travelling back and forth to Albany, meeting with Gov. Paterson, and “playing Grandma”, but suggested that Bruce call her staffperson, Bobbi, and see if she could squeeze some time into her schedule. Bruce immediately called me, and asked that I do the deed, which I did. Bobbi wasn’t there, but I left her a message, then, called her again on Monday. Bobbi was able to squeeze in time for the 25th (today), but she made the meeting for Bruce alone. I didn’t like that, but felt that we needed to get that meeting.

As it turned out, Bruce was in Albany today, so Gene and I went in his stead. We brought copies of the study from U of C. Gene took the lead in this meeting and started out by discussing the new study, and some of the highlights. Rep. Slaughter asked about the waivers, and we explained that the waivers are capped at the number of people that they serve. I also told her that CCA would actually cost less than the waivers, which are optional. Gene also said that the states would get 10% more in federal matching funds under CCA.

Towards the end of the meeting, Rep. Slaughter said three words that ADAPT has been waiting for a year to hear — “We’ll Sign on”. She spoke about the horrors of the medicare prescription program, and how, Under Bush, people with disabilities are really being devastated by program cuts. After some more conversation, and a reiteration that she would be signing on, we left.

I am very happy that Louise Slaughter will sign on to CCA. I’m curious about why she signed on after all this time, but I won’t speculate about that. I’ll be even happier when I go to Thomas, and see her name on the list. of course, even if she called Rep. Danny Davis’s office as soon as we left, it won’t appear on the website for several days. Rest assured, I will let you know the moment her name is on the CCA co-sponsor list!

Let’s back up—the SMSD protests

March 22nd, 2008

I want to back up for a bit and talk about the protests by students at the St. Mary School for the Deaf, in Buffalo. I want to start out with some information and links that Dean sent me the day before we went to support the students. It will give you some history, so I won’t have to go over a bunch of stuff when I post about my experice. Here goes:

Hi Everyone,

 I have received a forward message from St. Mary School for the Deaf (SMSD) Alumni that there is a serious protest because the School Superintendent William P. Johnson refused to tenure the popular math teacher Nettie Brewer

It makes no sense why they won’t tenure the popular teacher.  And it makes even worst sense that they gave no reason why they have released her.

The SMSD Alumni is supporting this protest and they are asking Alumni to join the protest.  I figured it would not hurt to have more people joining the protest so I am forwarding this to all of you:

March 18, 2008

Wear Yellow T shirt
Join the SMSD protest with students at SMSD campus  (in the front of Main
Building) at 3:00 pm to 4:00 pm

March 19, 2008

Wear White T shirt
Join the SMSD protest with student at SMSD campus (near Taylor Hall) at 3:00 pm
to 4:30 pm
(Because they will have BOT meeting at Taylor Hall)

The SMSD protest will sell the yellow arm ribbon. It sells $1.00.

If you want to donate to the SMSD protest please email to Suzi Behun, Secretary of SMSDAA, at pencilny@comcast.net for more information.  Any support they get will be appreciated.

You can even join the Students Protest at St. Mary’s School for the Deaf in Buffalo at the below website:

http://www.topix.net/forum/source/wivb/TQ9572MCAF4I62HAK

For more articles about this on Buffalo News:

St. Mary’s board member withdraws resignation:

http://www.buffalonews.com/cityregion/schools/story/298794.html

Parents berate St. Mary’s board with their outrage:

http://www.buffalonews.com/cityregion/story/298127.html

St. Mary’s students return, but complaints continue about superintendent:

http://www.buffalonews.com/cityregion/story/297185.html

Students continue protest on firing

http://www.buffalonews.com/cityregion/schools/story/294316.html

Protest continues despite warning:

http://www.buffalonews.com/cityregion/buffaloerie/story/294271.html

Students protest teacher’s dismissal at St. Mary’s School for the Deaf:

http://www.buffalonews.com/cityregion/buffaloerie/story/293451.html

More news to come!  And forward this to people who would like to support this…

Thank you,
 
Dean DeRusso
Deaf Systems Advocate
Regional Center for Independent Living
Advocacy and Independent Living Services for Individuals
497 State Street
Rochester, NY 14608

Sorenson VP: 585 546-7598
VP: 74.39.189.195
Voice Callers 1: (877) 467-4877 ext 07598
Voice Callers 2: 866-327-8877 ext 585.546.7598
TTY: (585) 697-1604
Fax: 585.546.7577
E-Mail: dderusso@rcil.org

Thanks Dean!

Come On Down–take two

March 20th, 2008

…and the next two contestants on The Pri–oops, I mean, the next co-sponsors of the Community Choice Act are…

Rep Bishop, Timothy H. [NY-1] - 3/14/2008
Rep Jefferson, William J. [LA-2] - 3/14/2008

And another New Yorker, to boot! That brings us to ten NY co-sponsors!

Going to Buffalo

March 18th, 2008

I am on my way to Buffalo with Dean and Frank. We are going to a protest at the St. Mary School for the Deaf. The students are protesting because a popular and good teacher was denied tenure, and fired for no reason. Both Frank and Dean are alumni of the school, so we are going in support of the students. I will check in later with more details.

Another Patterson article

March 14th, 2008

RA’s Note: Here is another article from today’s Democrat and Chronicle about incoming Governor Paterson. It is a decent article, with a number of quotes from me. Note though, that I am a Systems Advocate, not a Systems Analyst, even if it does have a nice ring to it. :)

Blind share hopes for Paterson’s role

Rene Latorre is legally blind, but she says her vision impairment is just another personal trait that has nothing to do with her successful career.

“It’s a characteristic like my hair color, my height. … To me, it’s no big deal,” said Latorre, director of advocacy for consumer concerns at the Association for the Blind and Visually Impaired. “I’ve achieved what I’ve achieved because I’m driven and I haven’t taken no for an answer.”

The same should go for New York Lt. Gov. David Paterson, Latorre said: His rise to the governor’s office might make him a role model for blind people, but it should just be a “sidebar.”

Paterson will be sworn in as governor at 1 p.m. Monday after Gov. Eliot Spitzer’s resignation takes effect. Paterson will serve the remaining three years of Spitzer’s term.

“It seems like there’s so much focus on (Paterson’s) blindness …, but to me it’s ‘Is he a leader that is going to move the state forward?’” said Latorre, who lives in Brockport.

The National Federation of the Blind hopes Paterson’s tenure as governor will be a watershed.

“Despite the obvious successes of blind people in politics and other realms, the blind still face a situation where society has very low expectations for us and we are perceived as unable to do very much,” said spokesman Chris Danielsen. “Whenever a blind person reaches a high-profile position, it’s helpful to the rest of us and generates the idea that we are capable of doing anything we set our sights on, just as everybody else is.”

As an infant, Paterson was blinded by an infection. He has optic atrophy, a degeneration of the fibers of the optic nerve. He has no vision in his left eye and 20/400 vision in his right.

Paterson does not use a guide dog or a cane. His aides at work leave him long voice messages and record speeches so he can memorize them. He plays basketball, can recognize people from a few feet away and has run a marathon.

During a press conference on Thursday, Paterson said he’s “privileged, proud and flattered” to be a role model and gratified by “whatever extent my presence will impress upon employers or impress upon young people who are like me.”

Anita Cameron shares that hope. A systems analyst for the Center for Disability Rights in Rochester, she is legally blind and uses a wheelchair.

She longs for the day when “it won’t be a big deal for people to see someone with a disability at work and it won’t be amazing for people to see us out there doing all of the normal things other people do.”

Kim Klein of Rochester has been in the computer technology and programming business for almost 18 years. Born legally blind, his poor vision has progressively worsened over the years. But he has adapted, relying on a few tools and programs that translate written text to sound and continuing to do the same kind of work he did with better vision.

Klein, an adaptive technology administrator for ABVI, never fully learned to read Braille. He lost his sense of colors or shapes about eight years ago but can still sense some light differences, such as whether it is sunny or cloudy outside.

Not everyone has been as fortunate to have the tools that Klein has at his job site, said Cameron, 42, of Rochester.

Cameron, who has college degrees in biology and computer information systems, was unable to find work in her chosen fields after graduating, a problem she said many people with disabilities face.

So she now fights for more opportunities, access, education, transportation and affordable housing for people with disabilities, she said, adding that she hopes Paterson’s high profile will draw attention to the needs of disabled people.

“My disability, my own blindness is just an inconvenience,” she said. “So many people with disabilities have the same gifts I have but haven’t been able to work because the supports and services aren’t there.”

While there is some hope among disability advocates that these issues will become more prominent because of Paterson’s own disability, Klein said it will be a tough sell.

“I would expect that some accessibility issues will have more attention, but maybe not,” he said, since any statutory change would first have to pass the Legislature.

CLVARGAS@DemocratandChronicle.com

MCDERMOT@DemocratandChronicle.com


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