Archive for the ‘Rochester’ Category

Sailing through rough times

Monday, August 23rd, 2010

Quite a bit has been going on! I returned home from the NCIL Annual Conference to an ugly situation. Monroe County had terminated it’s contract with the Center for Disability Rights (CDR) to administer the Consumer Directed Personal Attendant Services (CDPAS) program. That action resulted in a week-long vigil outside the County building. Today is the day that we will know how things pan out.

There are numerous articles about what happened on the CDR website, as well as articles I’ve written for Associated Content that will outline the full story. Needless to say, it was quite nasty (and possibly illegal) on the County’s part!

Thank you to ADAPT folks from Binghamton, NY, Philadelphia, and Georgia who came to Maggieville to support us!

UPDATE

It looks like the judge reserved his decision, so it could take up to another two weeks before we hear what the final decision will be.

Just as I was getting back into the swing of regular workdays, I was rushed to the hospital with horrible pain in my legs, from my hips to my ankles. At first, it was thought that there were blood clots in my legs, but thank goodness, that’s not the case. My doctor says that there are a number if things going on simultaneously, but he has to figure out what they are. I do have arthritis in my hips and knees, but that doesn’t account for all the pain that I’m in. The doc thinks that something neurological is going on, and wants me to get a nerve conduction test, or EMG in my legs as well as an MRI of my brain, as he thinks that there could be lesions on the brain due to Multiple Sclerosis.

I am at home for now. The doctor will not release me to return to work until he sees me again in early September. It’s just as well, since I can neither sit nor stand for any length of time. Hopefully, the three new pain meds that I’m now on will kick in and start to work. I’ll keep you updated on what is going on.

Disabled Riders Protest RGRTA, Say Stop Violating Federal Law!

Friday, April 23rd, 2010

Last week our disability community in Rochester said enough is enough! We were so sick and tired of dealing with RGRTA and their shenanigans that we organized a protest. Folks who use wheelchairs are still being passed up at bus stops. Lift Line users are still being denied rides. It is well know that RGRTA doesn’t deal well with folks who complain about them, particularly if you work for, or are in any way associated with CDR.

Want to know what happened? Find out here.

ADAPT Celebrates 20th Anniversary of Passage of ADA with Fun*Run in Upper Senate Park!

Monday, March 29th, 2010

It’s that time again, and thanks to those who supported me last year!

Sunday, April 25, 2010

Support Rochester ADAPT’s Anita Cameron in her run for civil rights for people with disabilities!

Many of you know me, Anita Cameron, of Rochester, NY. I am a passionate activist and advocate for disability rights. After all, I’m The Roving Activist! I will be leaving for Washington, DC on Saturday, April 24, 2010 to join ADAPT in celebrating the 20th Anniversary of the passage of the Americans with Disabilities Act.

On Sunday, April 25, I will participate in the ADAPT Fun*Run for Disability Rights. I pledge to roll 20 times around Upper Senate Park to raise money to keep the work of ADAPT alive, and I could really use some help from my Gentle Readers!

Please sponsor me either on a per lap basis, or better yet, a flat donation. To make it easy, I have a web site where you can make your pledge or donation. Click on the link below to help me in my effort.

http://www.adaptfunrun.org/sponsor.php?id=48

Let’s work together to end the institutional bias!

FREE OUR PEOPLE!

No Matter What You Call It…It’s Still a Cap!

Friday, March 12th, 2010

On Wednesday, March 10, 2009, a busload of us from Rochester joined disability rights activists from around the state to protest Governor Paterson’s proposed budget cuts that would cap personal care services at twelve hours per day. Read about what happened here.

My first paid article!

Saturday, February 27th, 2010

Wow, am I happy! A week ago, I wrote another article for Associated Content. This time, due to the encouragement of another seasoned AC writer who has been very supportive of me, I decided to ask for upfront payment along with performance pay. I’d never done this before, fearing that my writing wasn’t good enough.

I submitted the article last Friday evening, and on Monday, I got a notice saying that the article was declined for upfront payment because they couldn’t tell what city was the focus of the article. I didn’t understand that, as I mentioned the city several times.

All wasn’t lost though. In the notice, the Content Manager suggested that I insert the city name in the title, or create a subtitle, and re-submit the article. I added a quick subtitle, and re-submitted it.

I didn’t hear anything from AC for the rest of the week. When I got home from work yesterday, I was checking my account, and happened to glance at a small note. I took a closer look and saw that it was a notice that Associated Content had made a payment offer for my article! I quickly accepted the offer, which wasn’t bad, and the article was immediately published.

I am excited because this is the first time that I have been paid actual money for something that I wrote. I’ll definitely continue to ask for upfront payment for my new articles!

Nathaniel’s Pub: My Favorite Watering Hole

As usual, I added my unique twist on this review, but you’ll have to read it to find out what that twist is. :)

Let your voice be heard in Albany!

Sunday, November 8th, 2009

Bright and VERY early Monday morning, the Rochester crew will be saddling up to go to Albany, our state Capital, to protest the Governor’s, and state Republicans’ proposed budget cuts. I’ll try hard to blog live from the action. Anyway, here is the Alert that I sent out:

Let Your Voice be heard in Albany!

As you have probably heard, the Governor proposed DRASTIC cuts to home care, Medicaid, and Independent Living Centers that include a 10% cut from November through March and an on-going cut of three to four percent. Further, state Republicans have proposed to completely eliminate all Medicaid services that are labeled “optional” by the federal government, including coverage for prescriptions, as well as 18 other essential health care services. Although times are difficult, these cuts will make matters worse for many folks. These proposed cuts directly affect almost every New Yorker with a disability!

TAKE ACTION!!!! Let your voice be heard in Albany!

The Center for Disability Rights has planned a trip to make sure our voice is heard by the Albany bureaucrats who hold people’s lives in their hands.

November 9, 2009 – Albany

We are headed to Albany for a statewide action on the cuts.

We will meet at the Center for Disability Rights, located at 497 State Street by 5:30 AM, and we will arrive back at the office about 11 PM.

We don’t know what could happen, so people should be sure to bring meds and toileting supplies for two days in case we have unexpected problems or delays.

We really don’t expect to need them, but don’t want people to have serious medical issues, so bring them, just in case.

We have proposed approaches that will save money and support people living independently, but the Paterson administration has not acted on our proposals. Instead, they are proposing cuts to services across-the-board, so we have the right to be angry and push back.

Please join us and help others join us in this effort!

They Still Don’t Get It: My Vote Story

Sunday, November 8th, 2009

I got up Tuesday (November 3, 2009) bright and (not so) early so that I could make a quick stop at my polling place and vote before going to work. Thankfully, my polling site is down the street from my house at Andrews Terrace, one of those buildings whose residents are mostly seniors or folks with disabilities, so I didn’t have to worry about physical access.

I wondered if I would have the trouble that I had last year, where it took me almost two hours to vote because the machine had not been turned on, or would the machine be “broken” as it was claimed to be when I tried to vote on Primary Day this past September. Oddly, the machine had broken down a few minutes before I came, and they had called it in. I later learned that the Board of Elections had received no such call. Hmmm…

I got there a bit after 8:00 am, and presented myself to the election inspectors, and signed in. Afterwards, the gentleman (I don’t remember his name, so I’ll call him Tony) pointed toward the lever machine, but I wanted to use the accessible voting machine. They called to Don, an older gentleman who apparently was the tech guy. The screen was still blank, but I was told that they had powered up the machine earlier. After about ten minutes, they were able to get the screen to operate, and I was able to vote with no problems at all. The ballot printed out quickly and slid nicely into the privacy sleeve. I smiled and breathed a sigh of relief.

This is where I celebrate the happy ending, right? Where I sail out the door on a cloud of elation for having the first hassle-free voting experience since I’ve been in New York, right? WRONG! Almost immediately, Tony snatched my ballot out of the privacy sleeve, glanced at it, and proceeded to put it into the scanner. I asked one of the ladies (I believe it was Ruth) at the desk about privacy in voting, and she instructed Tony to let me see my ballot. Tony handed it to me without the privacy sleeve. I glanced at it, and handed it back. I asked about privacy again, and she assured me that they wouldn’t pay attention to how I voted, but meanwhile, Don had taken the ballot from Tony, and was perusing it, reading it like he was reading the morning newspaper! I was aghast, and my jaw literally dropped. I said, “See, this is exactly what I mean”! Ruth then yelled to Don, “Hey, hey, stop that! You can’t do that”! It took a full 30-45 seconds to get his attention, then, he handed the ballot to Tony, who scanned it, then folded it and put it aside. Ruth apologized, but I shook my head in disgust, got my “I Voted” sticker from Sarah, the fourth inspector present, and left.

Lisa, who also came to vote, told me that Ruth had remarked to her that I had used the machine last year, and was the only person to do so, and probably would be the only person to use it this year, as well. I recalled that I’d overheard the conversation while I was voting, and I heard Sarah say that it was good that they had the machine here for me to use.

I must say that I left that voting experience with a really bad taste in my mouth. The thought of not being able to cast my vote in secret like everyone else makes me exceedingly angry. I wasted no time in contacting the Monroe County Board of Elections, and spoke with Commissioner Tom Ferrarese, who was every bit as appalled as I was. He placed a call to the polling place and gave a stern reminder to the inspectors about privacy and the use of the privacy sleeve on ballots cast on the accessible machine.

It certainly seems, based on other complaints that I’ve received, that many of our election inspectors still don’t get it when it comes to voting access for people with disabilities. I have come to the conclusion that I will continue to have problems at the polls for the foreseeable future. I will, however, continue to fight for the right of people with disabilities to vote privately, independently, and secretly, just like everybody else.

Testimony before the State Senate Finance Committee

Sunday, November 8th, 2009

Monday, November 2, 2009, I was one of over 50 people from Rochester ADAPT/Center for Disability Rights who went to Buffalo, NY, for the hearing before the State Senate Finance Committee about Governor Paterson’s Deficit Reduction Plan (DRP). Chris, Bruce, and I presented testimony before this body. Here is my testimony. I will say here that many folks felt that it was very powerful!

Dear Senator Kruger and members of the Senate Finance Committee:

My name is Anita Cameron, and I am a Systems Advocate with the Center for Disability Rights, a Rochester-based Center for Independent Living with offices in Geneva, Corning, and Albany. I would like to thank you for allowing me to speak today regarding Governor Paterson’s Deficit Reduction Plan (DRP).

I am before you today not only in my capacity as System’s Advocate with the Center for Disability Rights, but as a person who has friends and colleagues who will be personally affected by the proposed cuts with devastating results.

As you know, the proposed cut to Medicaid is $287 million, which includes $24.5 million from home health care, and $27.5 from personal care. Combined with the loss of federal matching funds, the total amount of cuts to home care and personal care will total $131 million!

I have friends and colleagues who will be at imminent risk of institutional placement because the cuts will mean that they will not be able to receive the necessary hours of service for them to remain at home. Some of them work, and won’t be able to keep their jobs if they lose their hours of home and personal care services and are institutionalized. Not only will it cost the state more to institutionalize people, as has been demonstrated, the state will further lose revenue from the loss of tax and other revenues from these New Yorkers.

This unnecessary institutionalization is in direct contravention of the U.S. Supreme Court’s Olmstead decision, which states that “unnecessary institutionalization is discrimination under the Americans with Disabilities Act”. Instead of forcing people into institutional settings as a result of the proposed cuts, our state should be working expeditiously to create and implement an Olmstead plan to transition New Yorkers trapped in institutions back into their communities.

Another concern is that part of DRP includes $11.4 million in cuts to the state’s Supplemental Security Income (SSI) benefit. A cut of as little as ten dollars will have devastating effects for people on SSI. I have a friend who has told me that a loss of even $10.00 means that he won’t be able to pay his rent. For another friend this means that she can’t pay the co-pay on her medications. Another friend won’t be able to pay bus fare to go to the doctor, school, or church, leaving him trapped in his home. For another friend, that means that she won’t be able to buy the few groceries that she can on her limited income. Add to this that for the first time in 34 years, the federal government will not add a cost of living increase, and you can only imagine what that means!

The last thing that I want to speak of is the other proposed cuts by the Senate Minority that are particularly disastrous for people with disabilities and seniors. The proposal is to eliminate all Medicaid optional services offered in New York. Optional services are those services that are not required by the federal governments, such as prescription drug coverage and home and community based personal services. People with disabilities and seniors will not be able to get their medications, or receive personal services which will result in a worsening of disabling conditions and illnesses, hospitalizations, and institutionalization in nursing facilities. I know that we can do better than this. Cuts must happen, that is true, but there must be a common-sense way that this can be done, rather than gutting the very programs that would save our state money. There must be a mustering of political will to do the right thing by the most vulnerable New Yorkers.

Thank you for your attention,

Anita Cameron
Systems Advocate
Center for Disability Rights

Off to Atlanta!

Friday, October 9th, 2009

Well, its 10:55pm, and we’ve been on the bus for about an hour. Strangely, I’m not sleepy.

A light mist was in the air as our Rochester crew boarded the bus. A reporter from a local news station was on hand to see us off. He interviewed me and filmed folks waiting inside, and got footage of our people boarding the bus. By the time he left, he fully understood that we were going to Atlanta to help free our people. I’ll look for the story online, and link to it.

Now, I think I’ll settle down and enjoy the ride!

CCA Reintroduced!

Wednesday, March 25th, 2009

It’s happened! The Community Choice Act has been reintroduced into both the House of Representatives and the Senate! Yesterday, March 24, 2009, Senators Tom Harkin (D-IA), and Arlen Specter (R-PA), and Rep. Danny Davis (D-IL) came together to do the deed. I don’t have any information about the Senate, but on the House side, the bill number is H.R. 1670, and it has 25 original co-sponsors. Here they are:

Rep Baldwin, Tammy [WI-2] – 3/23/2009
Rep Brady, Robert A. [PA-1] – 3/23/2009
Rep Carney, Christopher P. [PA-10] – 3/23/2009
Rep Christensen, Donna M. [VI] – 3/23/2009
Rep Cohen, Steve [TN-9] – 3/23/2009
Rep DeLauro, Rosa L. [CT-3] – 3/23/2009
Rep Doyle, Michael F. [PA-14] – 3/23/2009
Rep Fattah, Chaka [PA-2] – 3/23/2009
Rep Hinchey, Maurice D. [NY-22] – 3/23/2009
Rep Israel, Steve [NY-2] – 3/23/2009
Rep Kaptur, Marcy [OH-9] – 3/23/2009
Rep Kind, Ron [WI-3] – 3/23/2009
Rep Kucinich, Dennis J. [OH-10] – 3/23/2009
Rep Langevin, James R. [RI-2] – 3/23/2009
Rep Larson, John B. [CT-1] – 3/23/2009
Rep Lee, Barbara [CA-9] – 3/23/2009
Rep Lewis, John [GA-5] – 3/23/2009
Rep Meeks, Gregory W. [NY-6] – 3/23/2009
Rep Moore, Dennis [KS-3] – 3/23/2009
Rep Olver, John W. [MA-1] – 3/23/2009
Rep Payne, Donald M. [NJ-10] – 3/23/2009
Rep Sanchez, Loretta [CA-47] – 3/23/2009
Rep Schwartz, Allyson Y. [PA-13] – 3/23/2009
Rep Sestak, Joe [PA-7] – 3/23/2009
Rep Velazquez, Nydia M. [NY-12] – 3/23/2009

There was a celebration in Washington, DC inside the Capitol. A busload of Rochester ADAPT folks attended (and are still there today for the Senate Finance Committee hearing on Long Term Care), but unfortunately, I wasn’t on that bus. I’m still out from surgery. I went to CDR, and was able to attend via teleconference. CDR was one of 119 sites in 37 states around the nation that had local hook-ups to the celebration. After Senator Harkin (who recognized Bob Kafka and Yoshiko Dart in his sppech), Senator Specter, and Rep. Davis Spoke (as usual, Danny Davis mentioned our mutual friend, Dennis Schreiber in his remarks), my dear friend Dawn Russell, from ADAPT got things started with a rousing call to action. Other speakers included Mitch LaPlante, who wrote the study that led to the new scoring on CCA, Victor Robinson, of Self Advocates Becoming Empowered (SABE), Marty Ford, of Citizens Consortium of people with Disabilities (CCD), Andy Imparato, of American Association of People with Disabilities (AAPD), who is my old boss (I used to work at AAPD), and John Lancaster, of NCIL. I was proud that in his remarks, John mention that ”The two best CILS in the country-Philadelphia and Rochester”.

As I mentioned earlier, The Rochester, and presumably, the Philly crew are staying for the hearing before the Senate Finance Committee on the role of Long Term Care in Health Reform. CCA is supposed to be one of the topics that will be covered. The hearing is at 2:30. I hope it will be webcast, but it doesn’t appear that it wiil be. I’ll check again.

I’ll also let you know when I get the Senate numbers for CCA, and co-sponsor list.