Archive for the ‘Independent Living’ Category

I’m off to NCIL!

Sunday, July 18th, 2010

In a few minutes, I’m leaving to catch my flight to Washington, DC to attend the NCIL Annual Conference. There are ten of us going, but the rest of the folks are driving in the van.

I’m excited because I’ll be assuming the duties of the sitting Region II Rep, and beginning my own two-year term as Region II Rep!

I also will be doing two presentations – one with our Transportation Advocate, and one with my friend, Cliff Perez, from Albany, NY about the fight for accessible public transit in the US. This is the twentieth anniversary of the passage of the Americans with Disabilities Act, and accessible public transportation is an important part of the ADA.

I’m looking forward to seeing my ADAPT friends there!

I Won!

Monday, July 12th, 2010

Wow, an I excited! I learned today that I am the new Region II Representative for the National Council on Independent Living, or NCIL. Further, since my esteemed predecessor cannot come to the NCIL Annual Conference, he has asked that I assume his final duties while there. My term begins on July 23, 2010.

How do I feel, and whats in store for me? I’ve written about that in an article at Associated Content. Click here to read about whats next for me!

Our Albany actions

Saturday, June 28th, 2008

As some of you know, on June 23rd and 24th, Rochester ADAPT went to Albany, the state capital, to, ahem, take care of some business. Actually, we visited the Assembly chamber (and had our pics taken with Asm. Joe Errigo, and Asm. Bill Reilich, co-sponsors of A10440, the Assembly version of a bill that would establish an Independent Living Center in Ontario County), then, visited the office of Asm. Susan John, to present her with a life-sized letter with 500 signatures in support of the aforementioned legislation, which she won’t sign on to. We then paid a visit to the office of Assembly Speaker Sheldon Silver to present him with a gift of 500 postcards signed by folks in support of A10440.

ADAPT then took over the offices of the Department of the Budget (DOB) because they will not release the reimbursemnt rates for agencies participating in the Nursing Facility Transition and Diversion (NFTD) Waiver. The law enacting this waiver was signed four years ago, but the waiver has not been implemented because the rates have not been released! Check out Chris’s post, ADAPT takes on Albany, on the CDR Blog to find out what happened!

The next day, we visited the Department of Health (DOH) to follow up, and to put some hard questions to Bruce Rosen, the Director of the Money Follows the Person (MFP) Program, and the NFTD Waiver, and Stuart Rosenblatt, Director of the Division of Planning and Policy. Afterwards, ADAPT stormed the State Education Department building and demanded to meet with its commissioner.

So, did ADAPT meet The Commish? What went down at DOH? Check out my CDR Blog post called Day Two of ADAPT Takes on Albany to find out!

Great news! NYS Senate passes bill to establish an ILC in Ontario County!

Friday, June 20th, 2008

I got this e-mail from Chris on Wednesday. Sorry, I’m a tad late in posting it, but it’s been a really busy time for me.

Hey Everyone!

I just got a call from Senator Nozzolio’s staff. She reports that our bill to establish an Independent Living Center in Ontario County just PASSED THE SENATE!!

It is awesome news!

Unfortunately, we’re still stuck in the Assembly Education Committee and State Education Department is opposing the bill, but by passing the Senate we are MUCH CLOSER to getting ILC status for CDR and Ontario County!

Keep up the good work!

RA’s Note: We will be in Albany on Monday, and will return home on Tuesday night. This trip has much to do with our IL funding efforts. I’ll be sure to tell you all about it!

Interview with The Barefoot Hostess

Wednesday, June 18th, 2008

A friend of mine, Dawn Zuppelli, hosts a show on Rochester Indy Media. Recently, she interviewed me and Mustafa “Moose” Hayes for one of her shows. The show features our work at CDR helping individuals, like Moose, get out of nursing facilities and our efforts through ADAPT to change the laws and policicies that segregate our people. It was really cool to do the show, and I am honored that Dawn thought of me and Moose to do this interview.

A description of the show can be found at: http://rochester.indymedia.org/newswire/display/21401/index.php

The show itself is online at: http://blip.tv/file/998470

During the first break, there is a clip from Gremmy Almighty, featuring our unofficial mascot, Gremmy, and his adventures with ADAPT. Dawn, who has been on many ADAPT actions as our ASL interpreter made this video because well, she’s crazily obsessed with, and loves Gremmy. Psst! I can’t talk, I love him too! If you want to see that Gremmy video in its entirety, click here.

Unfortunately, there is no captioning and no transcript for either of these. I apologize, but it is beyond my control in this circumstance.

Chicken or the Egg?

Friday, June 6th, 2008

As I said in yesterday’s post regarding the IL funding saga that we’ve been living through, Chris has been in Albany lobbying, if you will, for passage of A.10440, and S.7264. Here is a link to his post about where the opposition to these bill are coming from on the CDR Blog.

From Chris’s post–“This is the same State Educated Department (SED) that in the 2006 and 2007 budget cycles, when there was money available, decided NOT to fund CDR to serve Ontario County. When there was money available, they told us we had to already be an ILC. Now that we’re asking to be an ILC, they say that we have to already have funding?!”

Chris goes on to say that this is the same agency that uses CDR’s service statistics in their reports, because our numbers are so good–and it makes THEM look good!

Now, how bogus is that? When SED has the cash to fund ILCs, they say we can’t get a piece of the pie because we aren’t an ILC, but when we ask to be an ILC, they say no, because we don’t have the cash! THEN, they have the nerve to use our numbers to make their stingy butts look good! It reminds me of this song by Erykah Badu called “Tyrone”. In the song, she’s kicking her no-good boyfriend to the curb, and telling him to call his friend, Tyrone, to help him pack his things. In her litany of reasons for why she’s dumping him, she says this:

“Every time I ask you for a little cash-you say no, but then turn around and ask me for some a$$”.

Sounds like SED to me!

There is supposed to be a conference call today with folks from SED, the Governor’s office, Chris, and Bruce. Hopefully, some good will come from this call. If not, well, I feel some advocacy coming on…

Campaign: Establish an Independent Living Center in Ontario County!

Thursday, June 5th, 2008

As many of you probably know, we at CDR have embarked on an ongoing campaign to establish an Independent Living Center (ILC, or CIL) in Onatrio County, in Upstate NY. We have had several action alerts asking folks to urge their state legislators to support the establishment of of an ILC in the budget. We called, e-mailed, and faxed our state legislators. we even made a short, and amusing video that’s up on You Tube. Ultimately, the state decided that it had a couple hundred million for a new racino (racetrack and casino), but it didn’t have three hundred thousand for a new ILC! Mindblowing, isn’t it?

We decided to keep up the campaign, and got Senator Mike Nozzolio to put forth legislation that would establish an ILC in Ontario County, which he serves, and soon after, Assembly member Brian Kolb introduce an exact same bill in the Assembly. We have had meetings and action alerts around these two bills, A.10440, and S.7264. We ahve started a Postcard Campaign, which I have already described in an earlier post. So far, we have about 350 postcards that have been filled out. Today, we sent out 2500 post cards!

CDR has also been blogging about this on our blog. Here is the link:

http://rochestercdr.org/wordpress/?p=9

Yesterday, we had another Action Alert. There have been some interesting things happening in the past couple of days, so here goes:

Yesterday, June 4, 2008–Action Alert–Move S.7264 and A10440 out of Committee!

A.10440 and S.7264 are now sitting in the Education and Finance Committees. Please call Assembly member Catherine Nolan, Chair of the Education Committee, and Senator Owen Johnson, Chair of the Finance Committee. Ask them to move these bills out of committee and on to the floor for a vote before the end of the legislative session on June 23rd.

We made hundreds of calls! Chris was in Albany helping this along by meeting with various legislators. Bruce followed later in the evening. Here are Chris’s updates:

Updates from Albany

I had an 11:30 meeting with Devra Nusbaum, Legislative Director for Catherine Nolan. Devra was very aware of all the phone calls today and the lst time we made phone calls. She commended everyone for the large volume of calls.

Devra explained that they are sympathetic and would love to see more ILCs, especially in Ontario County. BUT, she is not optimistic about A10440 because the climate in Albany is rigidly against any new spending. When I pointed out that the bill doesn’t itself necessitate new spending, she elaborated. She indicated that the State Education Department is “adamantly” opposed to creating new centers without creating the funding. I further explained that it is State E.D. that has chosen not to give CDR funding when new funding was available because CDR was not recognized in law as an ILC.

Devra seemed to understand our chicken or the egg situation. She agreed to talk with the Assembly Ways and Means committee about the bill’s financial impact and other strategies of acheiving our goal.

I then met with Charles Silverstein from Senator Owen Johnson’s office. He was not aware of the bill or the calls, but he was very understanding of the need for an ILC and this bill as I explained it. He agreed to talk to the Chief of Staff and the Senator and get back to me.

The calls are great. I was over hearing some of them. Keep it up!  I have more meetings with committee members this afternoon and I’ll send an update if there is any significant news.

Stop the senate calls, continue the assembly calls!

I met with Senator Mike Nozzolio. He indicated that the Senate Finance leadership asked him to make one change in the bill – instead of taking affect immediately, it would take affect April 1, 2009.

We would not realistically have a shot at funding until April1, 2009 anyway, so I said that’s fine. He and I also agreed that having the specific start date also gives a much stronger impression of a commitment to secure funding for Ontario in the next budget. This is great progress.

I also met with Senator George Maziarz. He mentioned getting a lot of emails on this issue (thru our capwiz alert!). He agreed to cosponsor the bill and write a memo to Senator Johnson to put S7264 on the SFC agenda.

We look great on the Senate side – stop those calls.

No news on the Assembly side – keep those calls going through the end of the day.

Today, June 5, 2008–Update from Albany

Not a lot of exciting news today, but still progress being made.

Bruce made a barrage of calls yesterday to officials at State Education Department. They’ve agreed to a conference call with us on Friday. SED seems to be the main barrier to getting an ILC in Ontario.

I met with the Governor’s education staff. He is a Rochester resident and very supportive. He agreed to join our conference call with SED.

Assemblyman Bill Reilich has agreed to cosponsor the bill. He is on the education committee, so this is good. Susan John is also looking closely at cosponsoring, she is also on the committee and would be better positioned to help get the bill through. David Koon is also reviewing the bill for cosponsorship.

We have more work to do, but our efforts are moving things in the right direction. Good work!

I’ll keep you update as this saga continues…