Quite a bit has been going on! I returned home from the NCIL Annual Conference to an ugly situation. Monroe County had terminated it’s contract with the Center for Disability Rights (CDR) to administer the Consumer Directed Personal Attendant Services (CDPAS) program. That action resulted in a week-long vigil outside the County building. Today is the day that we will know how things pan out.
There are numerous articles about what happened on the CDR website, as well as articles I’ve written for Associated Content that will outline the full story. Needless to say, it was quite nasty (and possibly illegal) on the County’s part!
Thank you to ADAPT folks from Binghamton, NY, Philadelphia, and Georgia who came to Maggieville to support us!
UPDATE
It looks like the judge reserved his decision, so it could take up to another two weeks before we hear what the final decision will be.
Just as I was getting back into the swing of regular workdays, I was rushed to the hospital with horrible pain in my legs, from my hips to my ankles. At first, it was thought that there were blood clots in my legs, but thank goodness, that’s not the case. My doctor says that there are a number if things going on simultaneously, but he has to figure out what they are. I do have arthritis in my hips and knees, but that doesn’t account for all the pain that I’m in. The doc thinks that something neurological is going on, and wants me to get a nerve conduction test, or EMG in my legs as well as an MRI of my brain, as he thinks that there could be lesions on the brain due to Multiple Sclerosis.
I am at home for now. The doctor will not release me to return to work until he sees me again in early September. It’s just as well, since I can neither sit nor stand for any length of time. Hopefully, the three new pain meds that I’m now on will kick in and start to work. I’ll keep you updated on what is going on.
