Archive for October, 2007

If There Were Astronauts With Disabilities…

Wednesday, October 31st, 2007

I’m sorry that I am late to participate in the Disability Blog Carnival going on over at Kara’s, but I’m just not good with ifs. I decided to to repost an old post that I did on July 5, 2006. It refers to the July 4th launching of the space shuttle, Discovery, and some thoughts that I had, and still have about astronauts with disabilities. Those who know me, know that I am a nerd, and as a child, I was really into space and science. My biggest dream was to become an astronaut. Of course, if I had been able to do that, I wouldn’t have joined ADAPT and…

Some Thoughts…

I spent yesterday, the 4th of July checking out the launch of space shuttle Discovery. It was the first time ever that the shuttle had launched from Kennedy Space Center on the nation’s birthday. I watched with pride as the bird took off on the 230th birthday of the United States. I was especially proud of the two female crew members, one of whom is an African American. It reminded me of my childhood dreams of being an astronaut back in the days when neither women nor Blacks were accepted into the astronaut program.

This led me to wondering if NASA employs people with disabilities. Are there any folks with disabilities who are members of any of the many projects and teams that NASA has, or are we relegated to being merely janitors, cooks, or maybe, secretaries? I then began wondering if we ever got off of this rock, what role would people with disabilities play in this. Would we forever be left out of the important stuff? I believe that most folks with disabilities are healthy enough to withstand the rigors of spaceflight. At this point, though, I think that the only way that someone with a disability will get into space is if they are a rich tourist.

That is why I will be glad when private companies start doing regular space trips. Space travel and exploration should be for anyone who wants to go, and is healthy enough to do so, regardless of disability. It shouldn’t be just for government employees, or the super-rich. Just wait–when we have habs on the Moon, I’m going to apply as a policy analyst or an accessibility specialist. My skills and talents can be put to use anywhere, so why not the Moon, eh?

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Since that post, Discovery is once again on another mission, STS 120, and once again, Stephanie Wilson is up there making me proud to be an African American woman! Once again, I am thinking of what if people with disabilities could become astronauts or work in the space industry. Since that post, Stephen Hawking, the renowned theoretical physicist (who happens to be a person with ALS), was able to experience weightlessness. In April (or thereabouts) of this year, he took a ride on a 747 that NASA uses as a training lab so that astronauts can learn to work in microgravity. Though NASA was somewhat worried about the effect that this would have on professor Hawking, he managed quite well.

As I said before, I’m not good with ifs, but what if people with disabilities could become asronauts, or travel into space. Would the culture be different? What if NASA got over its fear and set up such a program? Would they find out that there were some things that people with disabilties could do better in microgravity, or weightlessness than nondisabled folks? What if one day, we set out on a voyage of colonization because we used up the resources of Mother Earth. Would people with disabilities be allowed to go? What if we had equal say in the governance of a new world? Would it be a better place? What if — never mind, I think I’ve gone far enough already in my ramblings!

Catching up — Road To Freedom Tour Stops in Rochester

Wednesday, October 31st, 2007

Remember when I posted about the ADA Road To Freedom Tour that was stopping in Rochester on september 4th? Well, I remembered that I never posted about it…duh! My friend and colleague, Terrie Lincoln did a write-up on that event, and gave me permission to post it here. Thanks Terrie!

ADA Road To Freedom Tour Stops In Rochester, NY

Tuesday’s event was AWESOME!  We had a great turn out of elected and other officials.  This was our first ever event that had representation from the Governor’s office.  They have agreed to come back in a few weeks and learn more about what we do and how their regional office can work with us here in Rochester! 

We had many special guests who joined us: County legislature Steve Eckel; Senator Joe Robach; Assemblyman David Koon; Assistant County Executive Jerry Helfer; and Gary Walker from the City of Rochester.  We also had Board of Elections Commissioners Peter Quinn and Tom Ferrarese; Attorney Mike Mule from the Empire Justice Center; Julia Day from the State Division of Human Rights; Molly Clifford, liaison for the disability community, and Jennifer Sanfalipo. 

Of course we can’t forget Jim Ward and Tom Olin who made the tour possible.  “The ADA is a living, breathing, grass roots movement,” said Jim Ward. “This tour isn’t about disability. It’s about humanity and how the world’s wealthiest nation doesn’t deal with its humanity.” 

With over 150+ in attendance, much of the excitement was the many new faces and agencies who joined us.  Amongst the agencies were Mental Health Coalition; MS Society; Happiness House; T.B.I; Spinal Bifida Association; Lifetime Assistance; Social Security Disability Coalition; and Gay Alliance of the Genesee Valley. 

Chris Hilderbrant was the MC for the event; he started it off by introducing our first guest, Molly Clifford.  Molly spoke on behalf of the mayor who couldn’t make it because of jury duty.  She said Mayor Duffy was very disappointed to have missed the event and if he could choose between jury duty and the bus tour he definitely would have been here.  “We continue to make improvements every day,” she said. “Some are small, some are large. We take access very seriously here.” 

CDR Executive Director Bruce Darling said critical issues for equal access are education, transportation, housing and employment. Unemployment among the disabled is 70 percent, he said. “We have a lot of work to do,” he said. “Even now, the rights to vote privately and independently are things we struggle for.” “It used to be that people expected people with disabilities to be grateful for the things when they helped the handicapped. We’re here to say we don’t want your help. We want civil rights, we want access. This is about equality, not being special,” said Bruce.

Our very own Anita Cameron also spoke.  She spoke about the ADA Restoration Act and the importance of it.  Anita said, “Our rights are not given to us because someone woke up one fine sunny day and thought it would be a good idea.  You have to fight for your rights. Then you have to fight to keep them lest they get whittled away as with the ADA. That is why we are fighting for the ADA Restoration Act.”  She ended with having the crowd chanting POWER FOR THE PEOPLE!!

Displays were set up under the tent outside and inside the building. The Road to Freedom exhibit features Tom Olin’s historical photographs of the struggle for disability rights.  Olin’s work has been featured at the Smithsonian Institute. The exhibit also includes a narrative of the grassroots history of the ADA as written by Arlene Mayerson of the Disability Rights Education and Defense Fund (DREDF).

While people were eating and enjoying the exquisite displays, we gathered over 30 petitions for the ADA Restoration Act and Community Choice Act.  In addition to the petitions, we also recruited over 15 volunteers. 

It was great… we look forward to many more big events here in the future!

 

I got my call!

Wednesday, October 31st, 2007

Can you believe it? I finally got the call that I have been waiting for! I received a message from Deandra Johnson, the assistant to Kim Kendrick, Assistant Secretary of Fair Housing and Equal opportunity at the Department of Housing and Urban Development (HUD). Remember when Kim came to Rochester and got an ADAPT welcome? She was supposed to give me a call the following day regarding the numbers of Housing Choice and other vouchers that were reclaimed by HUD that were originally earmarked for people with disabilities, but were “accidentally” put back into the general pool of vouchers.

To be honest, I did not expect Kim or Deandra to call me back with numbers; that would have been a miracle of the ADAPT goddess. I expected that I would get the same tired story that they were “working” on it, and indeed, that is what I got, in so many words. She said that the FOIA (Freedom Of Information Act) request that we had discussed was “taking longer than usual”, but that she “just wanted to touch bases with me to let me know that she was still working on it. Sure, Kim, but of course!

I’ll do an official write-up on this for ADAPT, which I will post here.

The saga continues…

Clinton to attend Disability Forum

Saturday, October 27th, 2007

Great news! As a direct result of our Action Alert, Hillary Clinton confirmed her attendance at the Disability Presidential Forum in New Hampshire next Friday. Almost 400 faxes went out, with 277 from New York alone. CDR will host a webcast viewing of the all day event, and I will let you know what happened.

Biden and Kucinich will attend Disability Presidential Forum

Monday, October 22nd, 2007

From JFA:

Just today, Senator Joe Biden (D-DE) and Congressman Dennis Kucinich (D-OH) (pictured below, right) confirmed their attendance at the “National Forum on Equality, Opportunity, and Access” – a presidential candidates forum on disability policy to be held on November 2 in Manchester, New Hampshire.

RA’s Note:

I am glad to hear that these two have confirmed their attendance. Both were co-sponsors of MiCASSA, and Sen. Biden is an original co-sponsor of the Community Choice Act. We will be setting up a get-together at the Center for Disability Rights so that those in the community, as well as staff can watch the webcast of the Forum. It will be interesting!

The Latest Community Choice Act co-sponsers

Monday, October 22nd, 2007

Here is a list of the latest co-sponsors of CCA. I am proud to say that the two most recent co-sponsors from New York signed on after a two-minute conversation that Chris had with their staff. Another signed on as a result of advocacy from our NY SSAN network. Way to go for all of everyone’s hard work!!!

S.799 / H.R.1621 Community Choice Act

Co-sponsors by state  as of 10-22-07

Alabama

Rep Bonner, Jo [AL-1] – 6/14/2007

Alaska

Rep Young, Don [AK] – 7/23/2007

California

Sen Boxer, Barbara [CA] – 7/30/2007

Rep Sanchez, Loretta [CA-47] – 9/5/2007

Colorado

Sen Salazar, Ken [CO] – 3/7/2007

Rep DeGette, Diana [CO-1] 3/29/07

Rep Udall, Mark [CO-2] – 6/14/2007

Connecticut

Sen Lieberman, Joseph I. [CT] – 3/7/2007

Sen Dodd, Christopher J. [CT] – 3/7/2007

Rep DeLauro, Rosa L. [CT-3] – 6/14/2007

Rep Courtney, Joe [CT-2] – 5/14/2007

Rep Murphy, Christopher S. [CT-5] – 5/14/2007

Rep Larson, John B. [CT-1] – 5/14/07

Delaware

Sen Biden, Joseph R., Jr. [DE] – 3/7/2007

Florida

Rep Hastings, Alcee L. [FL-23] – 10/9/2007

Georgia

Rep Deal, Nathan [GA-9] – 10/9/2007

Rep Marshall, Jim [GA-8] – 8/2/2007

Hawaii

Sen Inouye, Daniel K. [HI] – 3/7/2007

Iowa

Sen Harkin, Tom [IA]

Illinois

Sen Durbin, Richard [IL] – 4/12/2007

Sen Obama, Barack [IL] – 7/23/2007

Rep Davis, Danny K. [IL-7]

Rep Weller, Jerry [IL-11] – 5/14/2007

Rep Schakowsky, Janice D. [IL-9] – 5/14/2007

Rep Shimkus, John [IL-19] 3/21/07

Rep Gutierrez, Luis V. [IL-4] – 6/14/07

Indiana

Rep Visclosky, Peter J. [IN-1] – 3/29/2007

Kansas

Rep Boyda, Nancy E. [KS-2] 7/10/07

Rep Moran, Jerry [KS-1] – 9/5/2007

Maryland

Rep Wynn, Albert Russell [MD-4] – 7/23/2007

Rep Van Hollen, Chris [MD-8] – 9/5/2007

Massachusetts

Sen Kerry, John F. [MA] – 10/2/2007

Sen Kennedy, Edward M. [MA] – 3/7/2007

Montana

Sen Tester, Jon [MT] – 10/2/2007

New Jersey

Sen Lautenberg, Frank R. [NJ] – 5/17/2007

Rep Payne, Donald M. [NJ-10] 5/14/07

Rep Smith, Christopher H. [NJ-4] – 5/14/2007

New York

Sen Clinton, Hillary Rodham [NY] – 3/7/2007

Sen Schumer, Charles E. [NY] – 3/7/2007

Rep Walsh, James T. [NY-25] 5/14/07

Rep McCarthy, Carolyn [NY-4] – 10/9/2007

Rep Nadler, Jerrold [NY-8] – 10/15/2007

Rep Hinchey, Maurice D. [NY-22] – 9/6/2007

Ohio

Sen Brown, Sherrod [OH] – 5/17/2007

Pennsylvania

Sen Specter, Arlen [PA] – 3/7/2007

Sen Casey, Robert P., Jr. [PA] – 4/12/2007

Rep Fattah, Chaka [PA-2] – 8/2/2007

Rep Schwartz, Allyson Y. [PA-13] – 9/5/2007

South Dakota

Rep Herseth Sandlin, Stephanie [SD] – 9/5/2007

Tennessee

Rep Cohen, Steve [TN-9] – 5/14/07

Texas

Rep Doggett, Lloyd [TX-25] 6/14/07

Rep Sessions, Pete [TX-32] – 7/23/2007

Rep Green, Gene [TX-29] – 8/2/2007

Rep Hinojosa, Ruben [TX-15] – 9/19/2007

Utah

Rep Bishop, Rob [UT-1] – 6/14/07

Vermont

Sen Sanders, Bernard [VT] – 6/13/2007

Washington

Sen Murray, Patty [WA] – 9/20/2007

Wisconsin

Rep Moore, Gwen [WI-4] – 7/12/2007

Action Alert: Clinton and Giuliani MUST Participate at the Presidential Disability Forum!

Wednesday, October 17th, 2007

Hillary Clinton and Rudy Giuliani, both New Yorkers, and front runners for their respective presidential party nominations, have declined making commitments to attend the national disability presidential forum in New Hampshire on November 2nd, 2007. Tell them: Don’t Ignore Our Community! Click on this link

http://capwiz.com/rochestercdr/state/main/?state=NY

Then, click on the Take Action button for each of them. You may send the sample letter, or personalize it. Afterwards, delete any information that may already be there, and add your own, then, click Send. This Action Alert is open to EVERYONE, not just people from New York, so please respond!

Community Choice Act Hearing Update

Wednesday, October 17th, 2007

From ADAPT:

The House Energy and Commerce staff contacted us yesterday, and Reps. Dingell and Pallone now say they will schedule the hearing after the Thanksgiving break, in the first part of December.  Dingell is the Chair of the full Energy and Commerce Committee and Pallone is Chair of the Subcommittee on Health (the Subcommittee that will be having the hearing).

Thanks to all who emailed, faxed, called and wrote.  Great work!

We will keep you posted, as we know more.  All things can change, in this Congress anything can happen, so stay tuned.

Senator Biden Answers the Questions!

Wednesday, October 17th, 2007

Senator Joe Biden (D-DE) has answered the Candidate Disability questions put forth by AAPD, ADAPT, NCIL, and SABE. Click on the link below to see his responses.

http://www.aapd.com/News/election/071016sjb.htm

CQCADP visits Rochester

Wednesday, October 17th, 2007

The Commission on Quality of Care and Advocacy for People with Disabilities (CQCAPD) visited the Center for Disability Rights yesterday to meet with the Deaf, Deaf-Blind, and Hard of Hearing community to discuss the new Interagency Council on Services for Deaf, Deaf-Blind, and Hard of Hearing. Commissioner Gary O’Brien, and two of his staff came by to talk about the Council, and to hear what people want from the Council, and in what direction it should go. I attended the meeting, and took some videos. Here is the link:

http://www.youtube.com/profile_videos?user=adaptanita&p=r