Archive for May, 2007

Another Upcoming Forum

Thursday, May 24th, 2007

“Creating Total Wellness in Our Communities: A Community Forum”

From the brochure:

“Creating Total Wellness in Our Communities: A Community Forum” was developed in order to support the objective of stigma reduction within communities of color. The Forum Planning Committee hopes that by encouraging dialogue within communities of color, this forum will increase awareness and create comfort around the topic of mental health and emotional well-being.  

This event will feature skits performed by youth, as well as youth poetry! We will also have a small panel of mental health professionals of color, as well as youth and families who’s lives have been affected by a mental health challenge. The event will take place at St. Michael’s Church 869 N. Clinton Ave (in the church hall), May 30th 6-8pm. Its time to start talking about mental health in our community!

I am the RCIL Liaison to the Mental Health Community, so I will be attending this event. I havebeen working with Marsha, who is planning this event. Marsha and I went to St. Michael’s Church Hall to make sure that it is wheelchair accessible, and it is. I checked the bathrooms, and though I could get in (barely), the stalls are not accessible. However, maintainence will install grab bars in the stalls so that at least someone could transfer from their wheelchair to the toilet. This will be done in time for the forum. Also, Marsha will make sure that there will be some large-print handouts available. Needless to say, I am excited about the forum, and am looking forward to working with Marsha on upcoming events!

People First Listening Forums

Thursday, May 24th, 2007

Governor Spitzer to Host:

“People First” Coordinated Care Listening Forums

Governor Spitzer recently announced that Commissioner Dr. Richard Daines of the Department of Health (DOH), Commissioner Karen Carpenter-Palumbo of the Office of Alcoholism and Substance Abuse (OASAS), Commissioner Michael Hogan of the Office of Mental Health (OMH), and Commissioner Diana Jones Ritter of the Office of Mental Retardation and Developmental Disabilities (OMRDD) will be conducting a series of Coordinated Care Listening Forums throughout the State.

These commissioners will travel the State, listen to the health care needs of New Yorkers, and provide recommendations on how to improve and coordinate support for people who have needs across the four systems.  In each different area, the commissioners will be seeking feedback from local communities on access to resources, quality of care, interagency collaboration and coordination of care. 

The Coordinated Care Listening Forums will be held statewide at the following areas and dates.  (Exact locations to be announced.)
May 14 – New Paltz
June 6 – New York City
June 19 – Buffalo
June 20 – Syracuse
July 13 – Plattsburgh

Please note: Space is limited, seating will be on a first come, first served basis.  Forums will be broadcast live at each of the following agency websites.  

If you are unable to attend and want to provide feedback, you may e-mail your comments to one of the following:
DOH Email: dohweb@health.state.ny.us
Website: www.nyhealth.gov

OMRDD Email: public.affairs@omr.state.ny.us
Website: www.omr.state.ny.us

OASAS Email: public.affairs@oasas.state.ny.us
Website: www.oasas.state.ny.us

OMH Email: transformation@omh.state.ny.us
Website: www.omh.state.ny.us

The themes that will be addressed at the forums include:

Theme 1: Access

1.   Where have you experienced easy and effective access to services?

2.   What problems have you experienced in accessing services?

3.   Are these problems more difficult when you need to access services from more than one provider or system?

4.   What services have been the most difficult to obtain?

5.   Have you made decisions about you or your family’s care based on medical cost instead of medical advice?

Theme 2: Quality

1.   What does high quality mean to you?

2.   What services do you feel are of high quality and meet your needs?

3.   Where do you think quality could be improved when accessing services from more than one provider system?

Theme 3: Interagency Collaboration and Coordination of Care

1.   Do you feel that your services are generally well coordinated?

2.   Are there specific areas where care is well coordinated?

3.   Do you have suggestions to help us improve coordination across systems?

For additional information and updates on the exact locations of all forums go to one of the above links

Those of us from Rochester will be carpooling to the forum in Buffalo, and we’ll charter a bus to the forum in Syracuse. I will let you know how they turn out.

Pam’s Complaint

Thursday, May 24th, 2007

We are still sending in complaints to RGRTA about the buss pass-ups that have been happening to certain disability advocates here in Rochester. Pam Taggart, one of the advocates who experienced them asked me to post the complaint that she sent to the Powers That Be at RGRTA. No problem, Pam. Here it is:

Pam’s Complaint

Tuesday, the 22 of May 2007

Route 10 Portland, Bus 1212, heading Eastbound

Time 7:55pm 

We were at the Edgerton Center at 41 Backus St. waiting for the bus.

Anthony Griggs, Anita Cameron, Pat Taggart (my Twin Sister) and me, Pam Taggart were there waiting.

When the bus came, the driver told us that we were lucky that the bus wasn’t crowded, because he told us that when it was crowded, he wouldn’t take us.

Anita was on her cell phone and the driver thought Anita was filming him,

but she was NOT! The driver said he was going to sue Anita for filming him.

After he strapped in Anita, I asked the driver to get going so we all can get home, because last Tuesday, he drove so slow, we almost missed our bus.

And all the while he was saying that he had baby carriages on the bus last week,

but he did not say that on Thursday the 17th, 2007, when he left us. The driver asked us if we were still mad at him, and we said YES.

When Pat and I got off on St. Paul St., I said, “you should have told us that on Thursday”. But he did NOT.

Thank you,

Pam Taggart

New Doors

Wednesday, May 23rd, 2007

My building will be getting some new doors soon. I called my building manager to let her know that I am having trouble getting into the building. I explained that I have trouble getting over the threshold, and the doors close on me as I am struggling, and I can’t do both at the same time. I told her that I am afraid that in my struggle, I will damage the glass door. The first thing that Carol asked was if an automatic opener will solve the problem, and I said yes. She said that she would speak to the building facilities manager, and it shouldn’t be a problem. She said that the new doors would be in soon. Great — I am one happy camper! I’ll let you know when the doors go in.

Transit follow-up

Wednesday, May 23rd, 2007

I sent in a formal, written complaint to Ann Nichols at RGRTA/RTS today. Chris also spoke with her, and according to her, the pass-up problem wiil be addressed, and Chris will be informed when the driver has been “spoken to”. Pam and Anthony also filed complaints. Meanwhile, the video that I took of the incident yesterday has been uploaded to YouTube.

Here is the link to the bus video on YouTube:

http://www.youtube.com/adaptanita

Some more transit incidents

Wednesday, May 23rd, 2007

3/30/07: 8:45am. State/Jay, Westbound. Route 1 Lake, bus 1125. Lift would not work. I noticed that the problem had to do with the height of the curb in relation to the lift. Had the driver gone a few inches forward to the curb cut, this would not have happened. Unfortunately, the driver ignored my efforts to offer this solution. I am not a mechanic, but as a wheelchair user with extensive experience with bus lifts in numerous situations, I feel that I have valuable insight to offer. The driver could have at least tried the suggestion, as it was not a safety issue, and if it did not work, then, so be it. She did, however, call this in, and call a mechanic, who arrived, but by that time, the lift was deployed.

April

4/2/07: 5:21pm. State/Jay, Eastbound. Route 1 Park, bus 613. The driver asked if I would wait for the next bus because he said that there were a lot of people already on. Since the bus was not full, I insisted that he allow me on. When I tried to board the bus, the lift did not work. The driver said that it had worked a few minutes earlier, and there was indeed, a woman in a wheelchair who was already on the bus. The driver did call a mechanic, who managed to get the lift to work, and at the bus operator’s request, the mechanic followed the bus to our stop, but the lift worked.

4/3/07: 8:52 am. St. Paul/Main, Westbound. Route 10 Dewey, bus 672. The lift would not work. The #1 was behind it, but it was going back to the garage. I called RGRTA about this, and the woman took my name, etc, and made a formal complaint.

4/12/2007: 10:03 am. State/Lyell, Westbound. Route 1 Lake, bus 702. I and another passenger who uses a wheelchair missed our stop at State/Jay. The driver took us to the closest stop, which was at Lyell. I debarked form the bus, but noticed that my colleague did not. When he arrived at our office 30 minutes later, he stated that the driver would not let him off because as she said, “this isn’t your stop”. This driver was used to taking this person to 41 Backus Street, and decided that since he always goes to Backus Street, he couldn’t possibly be going anywhere but to that location, even though he asked to be let off at the same stop where I alighted.

4/18/2007: 11:37 am. St. Paul/Main, Westbound. Route 1 Lake, bus 624. Lift would not work. Driver called it in, and all passengers were transferred to another bus. I called this in to RGRTA, and made a formal complaint.

4/18/2007: It has come to my attention that clients of Lifetime Assistance, an agency that serves people with cognitive and developmental disabilities, have been denied rides because the bus drivers do not believe that these passengers are persons with disabilities, even though all passengers have shown proof of their disabilities. The drivers have decided that since these passengers’ disabilities are hidden, that they are lying or faking, and so, will not honor their monthly reduced-fare passes. I spoke with Michele Ashford, a Service Coordinator at Lifetime Assistance, who explained to me that they purchase the bus passes at the Main Street office, where they show proof of each client’s disability at the time of the purchase. Ms. Ashford has complained (written and verbally) to the customer service department, but has received no response from RGRTA. I advised her to write to Mark Aesch, CEO, and Ann Nichols, Director of Customer Service. I also advised her to bring some of her clients to the upcoming Town Hall meeting on April 30 to talk about this, and she has agreed to do so.

4/18/2007: 5:32 pm. State/Jay, Eastbound. Route 10 Portland, bus 669. The bus broke down.

4/19/2007: 6:13 pm. Main/Clinton, Westbound. Route 4 Genesee, bus 676. The lift did not work. The driver called it in, as did I. RGRTA did send a bus for me.

4/26/2007: 8:34 am. St. Paul/Main, Westbound. Route 1 Lake, bus 115. This was a low floor bus whose ramp did not operate automatically. The driver refused to operate the lift manually. I called RGRTA, and the told me that they were sending bus 1204, but Route 10 Dewey came before the rescue bus, so I took that, instead.

May

5/15/2007: 7:55 pm. Backus/Phelps, Eastbound. Route 10 Portland, bus 657. Driver picked up two passengers in wheelchairs, and two other passengers with disabilities. The driver complained that they were too slow, and warned them that if he came by the stop, and there were two passengers in wheelchairs wanting to get on the bus that he would pass them up. A complaint was registered with RGRTA.

5/17/2007: 7:55 pm. Backus/Phelps, Eastbound. Route 10 Portland, bus 675. Driver refused to allow passengers in wheelchairs to board the bus, telling them that he would send for another bus. Additionally, the Director of the Recreation Center boarded the bus one stop prior to Backus/Phelps. Passengers began complaining to the driver that they would have to “let those wheelchairs on”, and the driver told them that he was not letting them on. At that point, the Recreation Center Director asked for the driver’s information, then, asked to be let off of the bus. The driver became angry, and yold her that she could do what she wanted, that noyhing would happen to him. A complaint was registered with RGRTA. Ed, at RGRTA is handling this.

Follow-up to the last incident

5/22/2007: 7:55 pm. Backus/Phelps, Eastbound. Route 10 Portland. I went to the bus stop with Pam and Pat Taggart, and Anthony Griggs to see for myself what was going on. When the driver pulled up, he stated, “Y’all lucky tonight, the bus ain’t crowded. I told you, when the bus is crowded, guess what?” I was trying to surriptitiously videotape this on my cell phone, but the driver busted me, and asked was I taking his picture because that was illegal. he was so busy concentrating on me, that he totally ignored Pat, who was taping everything on her radio.

Whe we got on the bus, he tried to act friendly with Anthont and the Twins, and kept asking them were they still mad at him. They told him that they were, indeed, still angry. The driver tried to make excuses for passing them up on Thursday, saying that there were 4 of them in wheelchairs, when in fact, there were only two. He tried to say that there were 4 women with baby strollers on the back of the bus. Personally, this driver was as full of stuff as a Christmas turkey! I am convinced that the only reason that he let them on the bus was that he saw me with them, and I have ridden his bus before. I will share my information with Chris, and we will file a formal complaint, and see what RTS does. More than likely, there will be firther action, because he has already said that he will leave them if his bus is crowded. I will keep you abreast of this ongoing issue.

Snow Wheel Victory!

Wednesday, May 23rd, 2007

Remember the Wheel in the Snow with Rochester mayor, Bob Duffy back in February? For those who don’t remember, staff from the Center for Disability Rights and the Regional Center for Independent Living took the mayor, and Paul Holahan, Commissioner of the Department of Environmental Services, on a tour that neither will soon forget – both got into wheelchairs, and learned first hand what it was like to attempt to traverse snow-packed sidewalks. Click here to see the story. There was a very positive follow-up meeting with Commissioner Holahan and Molly Clifford, the Mayor’s Disability Community Liaison.

Mayor Duffy recently unveiled his proposed 2007-2008 budget that includes provisions for more frequent snowplowing.

From the proposed 2007-2008 City Budget:

“An enhanced level of service is provided for sidewalk snowplowing to increase mobility for our citizens. Plows will be sent out when there is three inches of snow on the sidewalk, instead of four inches, as previously done.”

Simply put, the mayor has allocated funds in the budget for more frequent plowing of sidewalks. What an important victory!

Here is the link to the story about the proposed budget in the Democrat and Chronicle:

http://www.democratandchronicle.com/apps/pbcs.dll/article?AID=2007705190329

There will be a hearing on June 6, 2007 at 4:00 pm to review the proposed budget for the Department of Environmental Services, which deals with snow removal. The hearing will be held at City Council chambers located at 30 Church Street on the second floor. Let’s turn out in force to show our support! If you have any questions, contact Anita Cameron.

Wow, the County works fast!

Wednesday, May 23rd, 2007

Last week, I received an e-mail from a colleague at work, telling me that the traffic signal across the street was out of order. That day, I called Jim Pond, at the Monroe County Department of Transportation, the agency that handles such problems. Jim told me that he would send someone out that day to check the traffic signal. A day later, I got this e-mail from my colleague:

The defective button on the traffic signal has been replaced with a red button that works properly. Thanks!

Wow, the County sure is working fast when we call!

Monroe Ambulance update

Wednesday, May 23rd, 2007

I got this e-mail the other day from Jamoe Penlon at Monroe Ambulance:

Anita,

Hello there!…..I am sorry I have been out of contact with you recently, I have been sooo busy around here. Bill Beideck and myself have been working on some programs recently and plan on including you in it. He (Bill) has asked me to throw you an email to let you know we haven’t forgotten about you. He said he should be contacting you in the very near future for your assistance. We look forward to working with you and your team in the future!

Have a wonderful day!

Jamie Penlon

I am looking forward to working with Jamie and Bill!

Action Alert — NCIL Voter Survey

Wednesday, May 23rd, 2007

SSAN Action Alert

May 22, 2007

National Council on Independent Living (NCIL)

Voting Survey

ISSUE:

The NCIL Voting Rights Work Group of the Civil Rights/ADA Subcommittee wants to know what voting is like for you in your area of the country. 

ACTION:

Go to the Catskill Center for Independence (CCFI)’s link to the survey from their website (www.ccfi.us):

Survey on Voting for People with Disabilities

Fill out the Survey.

Click Submit.

Here is mine…

Do you vote by mail, early voting, or at you polling place on Election Day?: Yes

Are you able to get in the polling place? : Yes

Have you ever been allowed a private, unassisted ballot? If so, what type?: Yes

Type of private, unassisted ballot:

I was given a paper ballot back on one occasion. Though I could have used some assistance, I stubbornly refused, and completed the ballot on my own. It took me upwards of 30 minutes. In 2004, when I lived in Washington, DC, I had the opportunity to vote using a DRE (electronic voting machine). I liked the electronic voting machine much better because I was able to vote unassisted, and it was quite easy! I was able to cast my vote in 5 minutes, instead of 30. I love the DRE’s, and despite the stories of problems experienced by some people with disabilities with the machines, I, personally, had no problems using them.

What is your disability: I have severe visual impairments, and I use a wheelchair due to Multiple Sclerosis and osteoarthritis.

Please include anything else you feel is important.:

For many years, I have been fortunate to live either next door to a polling place, or within 4 blocks of one. Each of the polling places were wheelchair accessible. For the past 17 years, I have served as either an Election Judge, poll worker, or Election Inspector. I have done this in every state that I have lived in. In 1990, I was the first person with a disability to serve as an Election judge for the City and County of Denver, and was able to get the board of Elections to provide training materials in alternative format.

In Washington, DC, I served as a poll worker, and recruited other people with disabilities to serve as poll workers. In 2006, I was asked by the DC Board of Elections and Ethics to help train poll workers and precinct captains in disability awareness and etiquette.

I must say for the record, that I prefer electronic voting machines to paper or optical scan machines. While I do not like the idea of a VVPAT (Voter Verified Paper Audit Trail), I do feel that security and access are very important, and should not be mutually exclusive. The VVPAT must be accessible to people with disabilities! At present, there are problems associated with VVPAT that must be addressed and remedied. If our great nation can send a probe to Pluto, surely, someone can design a DRE with an accessible VVPAT!

There is a trend that I have noticed among poll workers, and even some election officials in certain areas of the country, notably, Washington,DC, though this issue has finally been addressed there. That is, people with disabilities are being encouraged to vote via absentee ballot, instead of going to their polling place, even when it is close to the voter’s home, and is wheelchair accessible. I personally met election officials who felt that if they got people with disabilities in their area to vote absentee, they would not have to make the polling places in their precincts accessible, or deal with people with disabilities. This is an illegal practice, and must end! People with disabilities have the right to vote at their local polling place, if that is their wish.

My final remark is this: People with all types of disabilities should not only be encouraged to vote, but should be encouraged to serve as poll workers, Election Judges, Election Inspectors, Technicians, and Precinct Captains. This would not only involve us in the political process, but would dramatically reduce the incidents of discrimination and maltreatment at the polling place that many people with disabilities have reported. When people see those of us with disabilities participating in the political process on multiple levels, they are less likely to see us as objects of pity or derision, and more likely to view us as neighbors. I, myself, have experienced this first-hand!

Thank you,

Anita Cameron

Regional Center for Independent Living

Rochester, NY