MFP updates
Monday, September 4th, 2006ADAPT has been working hard to get the states to apply for the Money Follows the Person (MFP) grants. For some states, it’s been a losing battle, but for others, the effort has been successful.
Colorado
To date, the state of Colorado refuses to apply for the grants. I worte about Colorado’s odyssey in the What a week post a couple of days ago. My Mum, a Colorado ADAPT member, recently decided to up the ante by writing a letter to every Colorado representative, and lawmaker, including the Governor, to bring pressure on the department of Health Care Policy and Financing (HCPF) to apply for the grant. She has given me permission to post her letter, so here it is.
To all who may be concerned:
It has come to my attention as a taxpaying resident of Colorado and the United States,and as a disabled person with other friends and family, that all states (including Colorado) have been offered the opportunity to apply for a grant from CMS. This grant is part of the Deficit Reduction Act of 2005. Senate Bill S 1932 passed by both Hopuse and Senate, Sub Chapter B Money Follows The Person. Its use is to obtain less costly and least restrictive setting for persons with disabilities and goes along to help the HCBS Services, tied in with MiCASSA. It allows the state programs to be more versitile in obtaining the needs of this community of citizens in a more economical way for the State.
The State of Colorado although one of the frontmost states in Home Health Care is still a long way from having it all together. One of our biggest problems is having affordable housing to get our disabled brothers and sisters out of institutions. Other states are averaging about 1,000 a year while Colorado is usually only accomidating about 95. We have many who would like to take advantage of being released from these institutions, which would be less costly for the state.
Myself and many of my friends would like to see this happen, herein lies the problem. Our head of the Department of Healthcare Finance, Mr. Steve Tool has refused to even look into or designate one of his staff to look into this matter. He would not even attend the Teleconference hosted by the Federal Government. He is of the belief that because Colorado has no one on the waiting list right now that we are not eligible (how can we if there is nowhere for them to live). Several agencies that I know personally have been on the Teleconference and have found Colorado to be eligible to apply.
Myself and many of my friends and family (I can give names of real persons) strongly urge those who have interest in Health Care and Financing to get Mr. Steve Tool to look into and act on this matter.
My husband was severely Brain Injured from a heart attack and was railroaded to a nursing home.The base price was $145.00 per day not including medicine, therapy, supplies, equiptment, and medical care. He almost died there in 13 days. I got him into HCBS for an average of $72.00 per day, he was happier and sick very little. I feel that Mr. Tool is doing our Health Care Budget and our Disabled citizens a serious dis-service. It is my hope that anyone interested will have this matter looked into for the good of the State Budget and its citizens. There is a deadline of, I believe, September 5th, 2006 to apply.
Sincerely,
Alice F. Bozeman
Utah
The folks in Utah have the same problem as Colorado. Here is an article about their ongoing effort to help one person, and how it ties into MFP.
Community Activists Protest Nursing Home Stay Requirement
By Dave Reynolds, Inclusion Daily Express
August 23, 2006
SALT LAKE CITY, UTAH–Community advocates with Utah’s Disabled Rights Action Committee and ADAPT Utah gathered outside the state’s Health Department Monday to protest a rule that forces Medicaid recipients to stay in a nursing home for 90 days before they can receive services in their own homes.
The protesters were also drawing attention to the fact that the state has not taken advantage of the federal government’s “Money Follows the Person” initiative, which would allow people in nursing homes to take their Medicaid funding with them to pay for in-home supports.
“There isn’t anybody . . . who wants to go to a nursing home,” said DRAC organizer Barbara Toomer.
The protest was a follow-up to another rally the groups held on August 16.
State Medicaid Director Michael Hales has said that the 90-day rule is in place to help people avoid the state’s 4,000-person waiting list for services. Because Utah lawmakers have failed to authorize enough funds to eliminate the waiting list, some people could wait for more than a decade for services, the Salt Lake Tribune noted.
Related:
“Protest sparked by in-home assistance rule” (Deseret News)
http://deseretnews.com/dn/view/0,1249,645193591,00.html
“Disabled Rights Group Protests Nursing Home Requirements” (KCPW)
http://www.kcpw.org/article/1482
“Group protests nursing-home stay” (Salt Lake Tribune)
http://www.sltrib.com/utah/ci_4217678
Delaware
Delaware ADAPT sent this report on their work.
GREAT NEWS!!!
Our meeting last week with Medicaid director Harry Hill of DE was successful in his agreement to meet with the Sec of HHS to apply for MFP funds. Harry asked for our input as to how long (5 years) what populations (all disabilities) and many other factors of the application. we will be giving lots of input in the application. YEAH!!!
Medicaid Director Harry Hill met this morning with Delaware HSS Secretary Vince Maconi.
Sec. Maconi has also agreed for the Medicaid Dept. to apply for the MFP funds!!!!!! We will be working diligently with them to get this done.
Georgia
Georgia ADAPT sent the note that they received from the Department of Aging and Community Services:
Please be advised that we received the ‘go ahead’ from the Commissioner’s office, Department of Community Health and Department of Human Resources respectively. Attached for your information is a list of the decisions (action steps) made in our meeting with the Commissioner on Wednesday, 30 August 2006.
Judy Hagebak
Aging and Community Services
Phil Randall
Director, DHR
Texas
Texas ADAPT sent this short note:
Texas sent in our letter of intent to apply for MFP!
Here is a report from Texas regarding the MFP press conference that the folks in Austin put on.
For our press conference on the 31st in Austin, ADAPT of Texas delivered a “welcome wagon” basket of items symbolizing all the different parts of moving back to your own home (keys, toilet paper, soap, cans of food, free our people bumper stickers, coffee, 2 cups, a toy for the kids who are locked up, trash bags, paper people with money following them, toothbrush, and more). Though a gentleman who has gotten out with Money Follows the Person was there to share his experience and cadre of activist advocates were in attendance, the press did not deign to join us. We thought that might happen, hence the theater of the basket delivery. However, the Medicaid bureaucrats came out (some were called back from their lunch breaks or wherever they were) and were amazed we were happy and thanking them for applying. Good news is apparently no news to the media, but an almost shocking surprise to the Medicaid folks….. As Bob always says “a variable schedule of reinforcement!” FREE OUR PEOPLE!
Connecticut
Connecticut ADAPT sent this article:
WATERBURY REPUBLICAN - AMERICAN
Maybe Mom (and Medicare) can go home again
Thursday, August 31, 2006
BY DANIEL D’AMBROSIO
Copyright ) 2006 Republican-American
SOUTHBURY — Resident Joseph Stango’s efforts to bring his mother home for the health care she needs has received a big boost.
The federal government has made $1.75 billion available for a program to provide seniors home-based services.
In Connecticut, 100 people will be chosen to participate in Money Follows the Person, as the demonstration program is known.
The state Department of Social Services is preparing its application for the grant, which must be submitted by Nov. 1, according to spokesman Matthew Barrett.
Stango led a successful grassroots effort to involve the state in Money Follows the Person, which will be funded by the Centers for Medicare & Medicaid Services over five years through competitive grants.
Sen. Edith Gelt Prague, D-Columbia, who was instrumental in moving the Money Follows the Person legislation through the General Assembly, said Wednesday she believed every state that puts in an application for the program will be funded.
“It’s $1.75 billion over five years,” she said. “The Centers for Medicare & Medicaid Services will award the demonstration grants on or about Jan. 1, 2007, and the demonstration will continue through Dec. 30, 2011.”
Barrett said Wednesday the social services department will gather public input as part of the application process, but he didn’t know how or when that would be done.
“We intend to submit our application in a timely fashion,” he said. “We’ll get some kind of consumer input as part of the application.”
Stango said Wednesday the office of U.S. Rep. John Larson, D-1st District, had been instrumental in keeping him apprised of Money Follows the Person’s progress.
“I’m hoping the program will be up and running within the firs tquarter of 2007,” Stango said.
His mother, Dora, is currently in River Glen Health Care Center in Southbury.
Stango stressed his mother is receiving excellent care at River Glen.
But like many seniors, Dora Stango would rather be at home — in this case at her son’s home in Southbury.
Stango said his next challenge is to make sure his mother is among the 100 people picked for the program. Barrett was unable to confirm how the participants will be chosen.
Stango plans to go back to the Legislature and ask that Money Follows the Person be turned into a “universal project,” rather than a demonstration program, “so that everyone in the state of Connecticut in a nursing home has a chance to go home.”
Kansas
Kansas ADAPT sent this note and article:
We went and did a little action here in Kansas Thursday with 30 folks. And the stae told us that they were going to send there letter of intent by the 5th.
KSNT Ticker
Rally Hopes To Help The Disabled Remain Independent
Disability advocates rallied at the State Office Building Thursday morning urging action by the state. Kansas ADAPT is a grassroots organization out of Lawrence.
They want the state medicaid director to apply for a federal grant that would help those in need get money for home and community-based services, instead of having to live in a nursing home or another institutionalized setting. The deadline to apply for the federal grant money is September fifth. Those at this morning’s rally say it’s all about freedom.
An official with the state told 27 News the letter of intent to reply is being worked on and that they’re working with the state SRS to submit the letter at the end of this week before next Tuesday’s deadline.
Washington, DC
Capitol Area ADAPT sent this note:
We wrote the letter/notice of intent for the DC Dept of Health to send to CMS & they faxed it last Thursday.
Here is the letter of intent:
NOTICE OF INTENT TO APPLY
September 1, 2006
Sona Stepp
Centers for Medicare & Medicaid Services
7500 Security Boulevard
Baltimore, MD 21244-1850
Dear Ms. Stepp:
This is to advise CMS of the District of Columbia Medical Assistance Administration’s (DC MAA) intent to apply for the Money Follows the Person Rebalancing Demonstration Funds pursuant to Funding Opportunity No. HHS-2007-CMS-RCMFTP-0003.
The District is developing a proposal that will facilitate the community transition of people with disabilities from nursing facilities, ICF-MRs, and other institutions. DC MAA will offer streamlined access to services under the personal care option of the DC Medicaid State Plan, the Elderly and Physical Disabilities 1915( c) Waiver Program, and the MR-DD 1915 ( c) Waiver Program, among other community-based services. These waiver services are available to people with incomes up to 300% of SSI.
The proposal will include outreach to people with disabilities in institutions to provide applications and assistance in obtaining accessible subsidized housing in recently renovated apartments and apartments under construction in public housing, privately-owned residential developments, and small community residential facilities.
The contact person for the Money Follows the Person grant proposal at DC MAA is:
Robert Cosby, Ph.D., Chief Office on Disabilities and Aging
Medical Assistance Administration
District of Columbia Department of Health
825 North Capitol Street, NE Suite 5135
Washington, DC 20002
telephone: 202/ 442-5972
fax: 202/ 535-1172 or 442-4799
email: robert.cosby@dc.gov
We will develop partnerships with consumers, disability rights advocates, and District of Columbia governmental agencies that serve people with disabilities to ensure that the Money Follows the Person program is a coordinated effort.
This is an extraordinary opportunity and we look forward to working with CMS to make Money Follows the Person a reality in DC.
Sincerely,
Gregg Pane, M.D.
Director
As you can see, ADAPT has been working hard on this all across the country! There are some states like Texas, Maryland, New Mexico, New York, Connecticut, and Massachusetts that have actually enacted MFP legislation, while others like Colorado, Utah, and Pennsylvania utilizes their state budgets in an MFP-like fashion, Still, that does not preclude them from applying for the grant.


